Thursday, March 7, 2013

:)

That :) pretty much explains it...I have been feeling pretty darn good.  I know it's only been a short time, and I am very aware that problems could come back anyday, short term or for a while, but in the meantime I am going to enjoy it.  For over a week now I have felt better than I have at any point since surgery.  I still have stiffness in my neck, it's going to be a while yet before that (hopefully) goes away, but stiffness doesn't mean pain, and no pain is good!  No headaches, the pocket of fluid is smaller and less reactive, and far fewer 'floaters' in my vision.  Part of me wonders if it's not because I'm finally back to being a full-time Mom; hands on, getting more exercise, and more active and involved. I've missed my sweet boy so much!  I don't know what it is, but it feels good and I hope it can at least continue for another month because it's a pretty busy time for us!  We have Logan's birthday, my Dad (Grandpa!) coming to stay with us for a few days over his Spring Break, Easter, and 3 year/maternity pictures!
I had another follow-up today and of course they were happy to hear this too!  A few weeks back I was 'upgraded' from 1-2 week appointments to 6 week appointments, but 2 weeks into that is when the debilitiating headache started and we found the leak.  I have since had two folllow-up appointments and am now back to a 6 weeks...fingers crossed that we get to keep this one!  After that appointment I won't need to go back until a month or two after Carley is born, to see how everything is adjusting to the changes in my body once again.
In the meantime, I passed my glucose (GD) test yesterday which was a huge relief!  I failed the first one with Logan and had to sit through the 3-4 hour hospital test and was really hoping not to have to do that again.   
Thank you so much to all of our friends who have been here for us, whether it's to watch Logan so I can go to appointments or just to care and be happy with us about our little milestones, it means so much! 

I also want to share that I am so excited to have connected with some Moms in NC who are also dealing with Chiari, either themselves or their precious children.  I am also very excited to take part in my first walk to Conquer Chiari in Raleigh this September.  Team McGurk is ready to go!  Thanks so much to our friends who are already signed up, and those who hope to be able to!  Team McGurk will be well represented in Raleigh!
I recently learned that the same number of people suffer from Chiari as Multiple Sclerosis...can you believe that?!  Had you ever heard of Chiari or had any idea what it was before I was diagnosed and started talking about it??  The reason is because MS sufferers and their loved ones are out in the world being active, talking about it, and raising money for research.  We are determined to do the same for Chiari!
If you're interested in walking, please email me at magumom@gmail.com.  If you're not local to the Raleigh area, I would be happy to get information for you on walks in your area. 
Thanks also to my Mom and Dad for spreading the word back home about a Unite at Night walk in Clyde, Ohio, and who will also be raising money for Chiari.  Your support has meant the world and we love you so much!!